Hi All -
Last year I went raw – stuck at 100% for a few months and felt amazing. I was a regular poster on this site and stocked my kitchen with all the essentials (I went a little overboard – I have used my Excalibur dehydrator a whopping 1 time and have never used my Green Star juicer (my breville juice fountain is just so convenient that I haven’t taken the time to figure out its intimidating cousin). About 8 months ago, I started what is now a serious relationship with my boyfriend, and we started going out to eat frequently. I stopped the raw diet, but I still did things like drink kale-based green smoothies every day (on which he is now hooked as well, which I’m proud of him for). I started eating cheese again and doing things like sauteed mushrooms.
Almost 2 months ago, I started bleeding every time I used to restroom. I lost a lot of blood quickly. A colonoscopy a few weeks ago revealed that I have ulcerative colitis (and they removed polyps which were determined to be precancerous). The diagnosis was not a shock – I was diagnosed with colitis when I was 9 years old (I’m newly 35), but I have not had any active disease for many many years.
The doctor put me on a medication called Asacol. During my third sleepless night in a row, I had the epiphany that it was the medication that was keeping me awake and making me feel like I was losing my mind. I went online at 3am and found a site with over 200 people speaking about their experience on the drug. Apparently, I was in for some hair loss, weight gain, acne, and possible kidney damage. I have not taken the medication again, and I made an appointment with the Russian “doctor” from whose clinic I used to get the occassional colonic as soon as they opened in the morning.
The Russian doc (he is a PhD) has put me on a few supplements and started doing acupuncture treatments. He also commanded me to stay away from all wheat products and dairy. (The ‘regular’ doctor told me I will not get better without either the Asacol or a steroid. I refuse to take either, for now at least).
I also bought a book by Paul Nison titled “Healing Inflammatory Bowel Disease.” He speaks about how he healed his colitis (an achievement which doctors claim is impossible – it can be in remission but never cured) through diet, exercise, and positive thought. He talks about how doctors and conventional wisdom counsel that raw food, produce, is terrible for sufferers of Colitis and Crohn’s, and how that is total BS. He makes the point that these diseases consist of inflammation of intestinal tissue, and that our normal course of action when dealing with inflamed tissue is to stay off of it (think of a sprained ankle). He says we need to stay off of our intestines for periods of time. He does this with blended drinks so nutrients can be assimilated without a taxing digestion (blended salads and such) and thinks like almond milk. It was a real revalation to see someone touting as revolutionary the diet I was following a year ago.
For the past couple of weeks, I’ve been ‘eating’ mainly blended drinks and fresh vegetable and fruit juices. Stomach is still bad, but possibly a bit better.
Is there anyone else on the forums with ulcerative colitis or crohn’s disease? I’d be very interested in hearing about your experiences and how you are dealing with the disease and what raw foods work best for you.
I’m a healthy and active person who eats mostly (but not exclusively – there is the occasional restaurant cheat) raw and strictly vegetarian (since the age of 15). I do not want my life to be controlled by this stupid condition!
Any comments are welcome! Sorry for rambling on for so long…